All posts tagged: Kendra N Myles

Wellapalooza 2016 Retreat Registration Information

Wellapalooza 2016 Retreat Registration Information Our 2016 Wellapalooza conference is a destination 3-day integrative health and wellness retreat. Think vacation, calm, fun, and informative – the perfect way to recharge your mind, body, and soul! Dates: June 10th – 12th, 2016 Where: Maryland – split between Bethesda and Columbia Venues: The Mindfulness Center (Bethesda, MD), Haven on the Lake (Columbia, MD), and Turf Valley Resort (Ellicott City, MD) Confirmed speakers: – Dr. Clair Francomano (EDS/Genetics) – Dr. Larry Afrin (MCAS & Author of Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness & Medical Complexity) – Dr. Christine Mohrhaus Hale (Tenet Healthcare) – Deborah Norris, Ph.D. (The Mindfulness Center) – Rebecca Snow (Nutritionist/Herbalist/Chef) – & more! Registration for Wellapalooza 2016 is now live! We will be posting additional event details as we have them, but please feel free to email info@wellapalooza.com with any questions. Conditions of focus: Mast Cell Activation Disorders (MCAD), Ehlers-Danlos Syndromes (EDS), how these conditions relate to each other, and to other common chronic medical conditions. …

May is EDS Awareness Month!

 May is EDS Awareness Month! 


In honor of EDS Awareness Month (May), Sarah Wells from My Stripy Life and I are sharing details on what you need to do to register for your FREE copy our parenting EDS Kids e-book ‘51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)‘ once it’s released! What first started out as a joint blog post about parenting and having kids with EDS, turned into a six-month-long project that Sarah and I have been working on off and on, waiting for the right time to finish and release it. As we continued to collaborate on it, we kept finding more and more to add, and even more information and resources that we wanted to make sure were included in our post – which then turned our joint blog post into a full resource e-book. This e-book is the real; no holds barred advice that we wish we knew, and we hadn’t had to figure out for ourselves, the stuff that the medical books don’t always tell …

Yoga and The Hypermobile Yogi

Yoga and The Hypermobile Yogi – Managing Chronic Pain and Stabilizing Joints with Ehlers-Danlos syndrome (EDS)   “Yoga is dangerous for EDS.” “I was told not to do yoga.” “Yoga will make you end up in a wheelchair.”  I’m sure that you’ve heard all these phrases before, and many people feel that that all three are absolute truths. While we all are entitled to our opinions, the fact is there is no black and white factual statement that has come out about doing yoga when you have Ehlers-Danlos Syndrome. Usually, our ideas stem from personal beliefs, from what we have been told by someone we trust, or from our experiences with yoga. We are all different, and the truth is what works for someone else, does not work for you and vice versa. This applies to the practice of yoga. There are countless people with hypermobility/Ehlers-Danlos syndrome, who have been practicing yoga for years and have done well. There are also those who tried it and did not have the strength, nor were self-aware enough to know …