Month: March 2017

#Just5Minutes – 30mins cycling/spinning at home & 30 push-ups 

My nephew decided that he was going to start to 30 push-ups each day because someone commented on his “spaghetti arms.” I told my sister that I would join him because I couldn’t do 30 push-ups in a row in my feet either. They didn’t believe it. But nope, I have my own #EDSSpiral that I’m working out of. So, tonight I did 30 total push-ups – 15 on my feet and 15 on my knees. That was 5 more on my feet than the last time.  Post originally posted on Instagram –

Living with MCAS – “It’s nice to meet you too.” 

Saw a new MCAS doc today. Other than my main docs, I do not have a local doc who understands MCAS and issues associated with sensitivities to meds, etc. I’m not one to doctor shop and don’t have time to anyway, so I’ve just dealt on my own – barely. However, things have gotten worse, especially associated with hormones. Two times a month, my body decides it really wants to party hard (more than usual) by attacking itself and anything I eat or take. Fun times. My husband came with me and after we discussed the main gist of why I was there with my new doc, I asked her about allergy testing. I wanted to ask her for two reasons: 1. I’ve never had it and am somewhat curious. 2. Her response would give a good indication of her knowledge and understanding of MCAS overall – particularly for my case. Of course, I could be “allergic” to something more traditional and that would make things a lot easier – right? My new doc’s response …

#Just5Minutes – Lots of people workout at 6am – who knew? 

And what else can you do when you sleep like this? I met my friend at Zengo Cycle and I’m pretty sure she left shocked – per usual. However, class this morning reminded me of why I started going to Zengo in the first place – just about 5 years ago? ‘CLIMBING OUT OF THE EDS SPIRAL – MY ZENGO STORY’ #Just5Minutes #LiveEDSStrong #InvisibleStrength #EhlersDanlos #Hypermobility

Living with EDS and MCAS

When you are the founder of a 501(c)(3) nonprofit and your focus is on serving those with Ehlers-Danlos syndromes, Hypermobility Spectrum Disorders, and related conditions, this is how you roll to a new doc apt. And again tomorrow too … I just want the hot spots on my thighs, the millions of pins and needles that are all over that are pricking me, and the cold breeze blowing on me, to stop. Otherwise, I may lose my mind. #RealLife #AllClearDermCheck #LivingWithEDS #MCAS #EhlersDanlos #NewLocalMCASDoc #PrayingSheCanHelpTheseReactions #AlreadyWarnedAfrin #LivingWithTheTrifectaIsARollerCoaster

#Just5Minutes – Zengo Cycle Class for my 3rd Workout of the Day 

Barre3 & Yoga classes this AM, and then Power Hour at Zengo Cycle with Shannon Ryan = how to procrastinate when you have so much to do, are beyond behind with work, and can’t see straight (literally and figuratively).  Working out 3x in one day was the lesser of two evils and less painful to wrap my head around.  Bonus! I picked up this shirt for the silent auction at Wellapalooza 2017 Integrative Wellness Retreat!