Year: 2017

My view from #downdog. A good reminder that #Just5Minutes is sometimes all we can do – and something is better than nothing.

This week wasn’t the best for anything – a horrid flare with chronic fatigue and CFS, led to not my usual workouts, which led to eating way more of all foods I usually don’t and can’t, and that led to a whole bunch of falling way behind in life, work and my usual recipe for homeostasis. What I did do: Spent a lot of time with my husband Laughed – a lot Walked my kids to and from school a few days this week Allowed the kids to have play dates even though my house is a disaster Snuggled my babies Slept a lot & still managed to workout and move 5 days this week. Tonight’s workout was a 30 min treadmill walk + 30 push-ups, 3 sets of planks and a few chaturangas; hence, why my view in Downward Facing Dog was pertinent. And of course, I 💗 the Wellapalooza mats from Wellapalooza 2017. Actually, I love each and every mat designed for the EDS Wellness swag store. Each has a special meaning & …

#EDSFitTip – Practicing Yoga Safely with Joint Hypermobility (Clip 3)

‘Practicing Yoga Safely with Joint Hypermobility’ (Clip 3) with Kendra Neilsen Myles, C.H.E.S., RYT 200 – Video Clip is Part of the #EDSFitTip Movement Series. This video was recorded as part of the Yoga for Chronic Pain class held each Thursday from 1:15pm-2:15 pm at The Mindfulness Center in Bethesda, MD. Kendra’s weekly Yoga for Chronic Pain class, related educational materials, and video recordings are a part of the Mind-Body Strategies for Hypermobility with Chronic Pain program developed and implemented last year by Kendra Neilsen Myles, Founder & Executive Director of EDS Wellness, and in collaboration with Deborah Norris, Ph.D., founder of The Mindfulness Center, and Dr. Clair Francomano. Program materials and resources for program implementation of Mind-Body Strategies for Hypermobility with Chronic Pain,  including the initial 4 workshops held between November – December 2016 at The Mindfulness Center, can be found here. Class video recordings and other related videos can be found on the Strength/Flexibility/Health/EDS YouTube Channel.

‘Practicing Yoga Safely with Joint Hypermobility’ November 15th (Today!) at 02:30 PM EST via ZubiaLive!

Please join us November 15th (Today!) at 02:30 PM EST via ZubiaLive! This live broadcast, ‘Practicing Yoga Safely with Joint Hypermobility’ can be viewed on ZubiaLive using your desktop by going to www.zubialive.com.To register for this live seminar, go to – http://web.zubialive.com/signup or through the easy iPhone App (not currently available on Android devices). Link to App on iTunes – https://12vn.app.link/BC3MUyyRzH. iPhone users can also interact with the host in real-time. Live broadcasts via Zubia can be public or private — options I was looking for. Today’s broadcast is an impromptu test to try the Zubia Platform. The plan is to keep things simple, see how a live broadcasting via Zubia works for our needs and share a few helpful tips. This will be a simple and short broadcast, discussing tips for practicing yoga safely with hypermobility and some general medical info on hypermobility related disorders, such as EDS & HSD. During the broadcast, you will be able to post questions if using the iPhone App, but not if viewing via computer. That options will be fixed next week. Also, if you …

6th Annual Wego Health Awards – Lifetime Achievement & The Best Kept Secret Award Nominee

Not sure who, but a few very nice people nominated me for the 6th Annual WEGO Health Awards. I was nominated for both the Lifetime Achievement Award and The Best Kept Secret Award – Thank you! A great email to read when you first get up on the morning — even better when you receive a 2nd email with another nomination a few days later. Submissions for additional Health Activist Award nominees ends tomorrow (Friday, July 7th, 2017). After Friday, people will be encouraged to cast votes/support for the finalists once the nomination period ends. There’s still time to submit additional nominations for all categories and for anyone you feel is deserving of a nomination! Maybe a few people! Go to www.awards.wegohealth.com. Winners are decided on by the panel of judges based on a variety of factors, including how many supportive votes a nominee has in a specific category. Link to view my Wego Health profile – https://awards.wegohealth.com/nominees/12868

It’s the little things that keep you going …. 

It’s the little things that keep you going — especially after being up all night working trying to fix one of your websites (You know, the one that has the most traffic per day? Yep, that one. Fun times.) which totally crashed because of a plug-in update and you can’t get into the back-end either. No.Idea.What.To.Do. And ….. you had a product review due, actually, it’s overdue, and it was about to be posted before the devil plug-in corrupted everything. And finally, you were trying to work on editing speaker presentation videos from two very important conferences you held recently for your still newly launching nonprofit, when you put one of the big memory cards (“big,” meaning it can store a lot of content, especially video content on it) into your computer to make sure that all of its videos had already been downloaded. Thinking that all videos had more than likely already been downloaded, you opt to still triple check. Then, you realize that the memory card is empty when your computer reads it. …

Gentle Hatha Yoga for Hypermobility and Chronic Pain with KNMyles Class 2 – 40mins

Gentle Hatha Flow Yoga for Hypermobility and Chronic Pain with KNMyles, C.H.E.S., RYT 200 of EDS Wellness. 40-minute class recorded at The Mindfulness Center as part of EDS Wellness’ ‘Mind-Body Strategies for Hypermobility with Chronic Pain’ movement and support group program on Thursday, June 29th, 2017. Please remember – Participate at your own risk. EDS Wellness, Strength/Flexibility/Health/EDS, their affiliates and this YouTube channel, are not liable for injury or issues that may occur as a result of viewing or participating in this recorded video, or other videos freely available on the Strength/Flexibility/Health/EDS YouTube channel. Always ask your physician, physical therapist, or another healthcare provider before trying a new exercise, movement, or another program. When in doubt, just watch. These classes are not suitable for everyone. They are also not to be misconstrued as a directive for everyone living with a type of Ehlers-Danlos syndrome, Hypermobility Spectrum Disorder, or their related conditions or as healthcare advice. Participation in this recorded class or any of our other videos means that you understand and accept EDS Wellness and Strength/Flexibility/Health/EDS’ and its …

13 Years Ago Today ….

You can never be prepared for certain things to take your breath away, but memories like this sure do. They also leave you permanently attached to the people who were with you at the time – both family and new friends you had only recently met. I wasn’t initially sure why this picture showed up on my FB memories – especially as a memory from 3 years ago, and because my mom passed away over 10 years ago. And then I realized why – my mom passed away 13 years ago today – I had just found out 10 days earlier that I was pregnant with my first baby, Johann, who we named after his Bedste.

Gentle Hatha Flow Yoga for Hypermobility and Chronic Pain with Kendra Neilsen Myles, C.H.E.S., RYT 200

Gentle Hatha Flow Yoga for Hypermobility and Chronic Pain with Kendra Neilsen Myles, C.H.E.S., RYT 200 of EDS Wellness. Full 55-minute class recorded at The Mindfulness Center as part of EDS Wellness’ Mind-Body Strategies for Hypermobility with Chronic Pain movement and support group program.   Please remember – Participate at your own risk. EDS Wellness, Strength/Flexibility/Health/EDS, their affiliates and this YouTube channel, are not liable for injury or issues that may occur as a result of viewing or participating in this recorded video, or other videos freely available on the Strength/Flexibility/Health/EDS YouTube channel. Always ask your physician, physical therapist, or another healthcare provider before trying a new exercise, movement, or another program. When in doubt, just watch. These classes are not suitable for everyone. They are also not to be misconstrued as a directive for everyone living with a type of Ehlers-Danlos syndrome, Hypermobility Spectrum Disorder, or their related conditions or as healthcare advice. Participation in this recorded class or any of our other videos means that you understand and accept EDS Wellness and Strength/Flexibility/Health/EDS’ and its …

“Exercise Should be the 4th Meal of the Day” – Dr. Pradeep Chopra

At Wellapalooza 2017, Dr. Chopra said that movement and exercise should be our 4th meal of the day (the link to his presentation slides is below). He also suggested that everyone should get a paddle board (jokingly). Glad my husband took him seriously though! My husband surprised me with a belated Mother’s Day present — a Tamarindo Paddle Board. Tamarindo paddle boards is a company based out of Virginia Beach, which is a good thing because I’ve already signed up for paddle board yoga and paddleboard barre classes. Link to Tamarindo Paddle Board’s website – https://www.tamarindoboards.com/product-page/hermosa-11 SUP Barre classes in Va Beach. Classes held at sunrise or sunset – https://www.tripadvisor.com/Attraction_Review-g58277-d10050185-Reviews-SUP_Barre-Virginia_Beach_Virginia.html?m=19904 Link to Dr. Pradeep Chopra’s Presentation Slides from Wellapalooza 2017 – http://www.wellapalooza.com/dr-pradeep-chopras-presentation-slides-management-chronic-pain-eds-wellapalooza-2017/