All posts tagged: Personal

#Just5Minutes – Week 4 of making the decision to take my life and body back is 1/2 way over

The sunrise on the way to barre class this morning – beautiful. It makes getting up super early just a bit easier.  – I’ve worked out 1-2x a day, every day. – I’m focusing on doing yoga 2x a week – not just when teaching it. My next goal is to do it daily for a 30-day challenge. – I’m still going to PT an average of 1x a week – I’ve made sure that I’m walking as much as I have been – especially when taking the kids to school or picking them up. – I’ve gone to bed at a reasonable time each night, but I’m still working on getting enough sleep and rest. Pacing has never been my strength. – I’m making sure that I’m taking my supplements each day, and working on improving my nutrition even more (although I’m super hungry all of the time, which isn’t usual for me). – I’ve been trying to make sure I make time for acupuncture, massage and other alternative therapies that I know help, …

Love my babies – no matching outfits, unshowered, sandy and sunkissed. Best kind of pictures. 

Before I was knee-deep in launching a 501(c)(3) nonprofit, planning wellness retreats for patients and holding physician learning conferences, or before Sisters Media branched out into print and digital publishing for medical and health field, my main love other than working out, was photography. Still is by far one of the things I love the most – especially when I actually use my good camera. 😉 

Living with MCAS – “It’s nice to meet you too.” 

Saw a new MCAS doc today. Other than my main docs, I do not have a local doc who understands MCAS and issues associated with sensitivities to meds, etc. I’m not one to doctor shop and don’t have time to anyway, so I’ve just dealt on my own – barely. However, things have gotten worse, especially associated with hormones. Two times a month, my body decides it really wants to party hard (more than usual) by attacking itself and anything I eat or take. Fun times. My husband came with me and after we discussed the main gist of why I was there with my new doc, I asked her about allergy testing. I wanted to ask her for two reasons: 1. I’ve never had it and am somewhat curious. 2. Her response would give a good indication of her knowledge and understanding of MCAS overall – particularly for my case. Of course, I could be “allergic” to something more traditional and that would make things a lot easier – right? My new doc’s response …

Living with EDS and MCAS

When you are the founder of a 501(c)(3) nonprofit and your focus is on serving those with Ehlers-Danlos syndromes, Hypermobility Spectrum Disorders, and related conditions, this is how you roll to a new doc apt. And again tomorrow too … I just want the hot spots on my thighs, the millions of pins and needles that are all over that are pricking me, and the cold breeze blowing on me, to stop. Otherwise, I may lose my mind. #RealLife #AllClearDermCheck #LivingWithEDS #MCAS #EhlersDanlos #NewLocalMCASDoc #PrayingSheCanHelpTheseReactions #AlreadyWarnedAfrin #LivingWithTheTrifectaIsARollerCoaster