Author: HypermobileYogi

Splits, Hypermobility and Yoga

Splits – not something I usually do in Yoga, not because they are hard, but because they are way too easy for me.   If you are hypermobile, splits can be super easy and done (or very close) with little effort – that’s not always a good thing. It may seem like a yogi dream, but many of the issues that can or may go along with hypermobility are not so great. Unfortunately, hypermobility has mistakenly been glorified in many sports, including dance, gymnastics, ice skating, and more. Yoga is much the same, but times are changing – thankfully because many of us were told not to do yoga and that yoga is dangerous if you have joint hypermobility, which is often caused by an underlying connective tissue disorder such as Ehlers-Danlos syndrome (EDS). There are several types of EDS, and also several other heritable conditions that affect the connective tissues and cause hypermobility – Marfan Syndrome is one, as is Williams Syndrome, Sticklers Syndrome, and Osteogenesis Imperfecta. There are also several types of hypermobility …

Life by Design – Gratitude for doing what I love 

I started my first business 10+ years ago after I had baby #1 after I was diagnosed with EDS. This business was also started after being on long-term disability from my “career” job, one that I loved, and after facing the decision to accept or decline permanent social security disability at age 27yo. I declined it. My choice — being disabled at 27yo didn’t feel right for me, and working, doing something, helps me manage my health and well-being. I also needed to help support my family, be available for my son (only one baby at the time), and have flexibility around my husband’s job. I figured I could find something that I could do on my own, and I did. Five years ago, I started a 2nd business to serve the community that I was now a part of — both as a patient and volunteer. I wanted to use my degree to help disseminate education and work with people on how they could best help themselves, if they didn’t have a physician or PT …

The Constant Whooshing in My Head …..

When you have constant, non-stop whooshing in your head (no, not just tinnitus), you’ve been diagnosed with Classical Ehlers-Danlos syndrome (CEDS) 3x, but genetic testing came back negative, and the EDS world really doesn’t know what you have – other than you have some kind of connective tissue disorder that’s not Marfan Syndrome, VEDS, or other more common mutations …… They do know that you have 2 CBS Gene mutations and a few other genetic mutations, but they haven’t determined how any, if at all, play a role in a type of EDS, or a connective tissue disorder that “looks like” Classical/Vascular/Hypermobility-types of EDS. And there’s no identified genetic marker(s) for Hypermobility type Doctors and genetic testing has also determined that you have 2 CBS Gene mutations and a few other genetic mutations, but they haven’t determined how any, if at all, play a role in a type of EDS, or a connective tissue disorder that “looks like” Classical/Vascular/Hypermobility-types of EDS. And there’s no identified genetic marker(s) for Hypermobility type EDS, unless you count TenX. …

#Just5Minutes – Hotel Gym Workout 

I was graciously asked to speak at the West Virginia EDS Support group meeting. Because the support group meeting helped in the evening and I knew that we wouldn’t get out until a bit later, and because night driving is hard for many reasons, I decided to stay overnight. Staying overnight meant that I either worked out in the hotel gym or in my hotel room — I opted for the gym, even though I did bring my TRX bands and other equipment with me. I did a combo of cardio on the treadmill & eliptical, as well as strength with weights.     

Organic Aromas Product Review

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.” THE MAGNIFICENT ESSENTIAL OIL DIFFUSER BY ORGANIC AROMAS I love aromatherapy products, but I’ve not purchased or used a diffuser before. Previously, I’ve used candles, incense, heated candles, various other aromatic products, such as heated oils, plug-in air fresheners, and more. In fact, at some point in my marriage, I was forbidden from buying any more candles, for fear that I may leave one lit, and when you have children — it’s just not worth it. Thank goodness for the invention of the battery-operated candle. The only problem is that battery operated candles look decent, but they do not give off the same smell. I then focused my necessity to have a certain aroma in our home to plug in scented air fresher, which did last a few others — other than when …