All posts tagged: hypermobility

What matters is that we showed up – together. 

Published by HypermobileYogi

Powerful class today.  12 people total showed up – vulnerable, open-minded and honest. I did the same.  We are all in this together.  While I’m learning to teach yoga and mindfulness to our community, versus solely speaking and writing about it, those who’ve come to our last three mind-body classes, have showed up to face their own fears surrounding movement and anything that may cause additional pain or trauma. What matters is that we showed up – together.  What matters is that we allowed ourselves to be vulnerable and open-minded.  What matters is that we know that we are not alone.  What matters is that we allowed ourselves to focus on the positives and what we can do, not just what we can’t – even if it was for #just5minutes.  I’m blessed and grateful to have the opportunity to walk this journey with all those who open themselves up and allow me to walk with them. Not lead them, but walk beside them.  Today was humbling.  Thank you to Deborah Norris, Ph.D. and everyone at …

Our 3rd MIND-BODY STRATEGIES FOR HYPERMOBILITY AND CHRONIC PAIN class is tomorrow – November 18th!

Published by HypermobileYogi

We had fantastic 1st & 2nd MIND-BODY STRATEGIES FOR HYPERMOBILITY AND CHRONIC PAIN classes!  Thank you to everyone who came out! A follow-up email including information shared in the both classes will be sent soon. Promise.  Our 3rd class will focus on the mindfulness for hypermobility study that was conducted at NIH a few years ago, John Kabat-Zinn’s Mindfulness program, and will include a 30 mins restorative yoga practice.  All levels welcome! This series of 4 classes are being held at The Mindfulness Center in Bethesda, MD.  Classes begin at 1:30pm.  Address for The Mindfulness Center: 4963 Elm St., Suite 100. Bethesda, MD 20814 (Above the Wells Fargo Bank) We have several people registered, which is great! If you are already registered or are interested in joining us tomorrow or for our final class in this series on December 2nd, here are a few suggestions to help ensure your safety and comfort: – If you have a yoga mat, you are welcome to bring it. However, The Mindfulness Center has plenty. I often recommend using …

What is Joint Hypermobility versus Hypermobility Syndrome?

Published by HypermobileYogi

‘For these people, hypermobility may even be considered an advantage, for example, athletes, gymnasts, dancers and musicians might specifically be selected because of their extra range of movement. For a small percentage of the population, however, instead of being advantageous, hypermobility may be associated with joint and ligament injuries, pain, fatigue and other symptoms’ (Hakim A – www.hypermobility.org). The exact cause(s) of joint hypermobility is unknown; however, “loose joints” are believed to be caused by various mutations to one or more of the components that help build our connective tissues. Research is suggesting that both genetic and epigenetic factors play a role in the presentation signs and symptoms, as well as the severity of issues associated with joint hypermobility. In some individuals, joint hypermobility is an indication of a type of hypermobility syndrome, such as Ehlers-Danlos syndrome – hypermobility type (EDS-HT). Hypermobility syndromes are classified as heritable connective tissue disorders or connective tissue diseases. There are several types of hypermobility syndromes. Ehlers-Danlos syndrome (EDS) is a type of hypermobility syndrome and Ehlers-Danlos syndrome – Hypermobility …

Pictures from EDS Wellness’ 2nd Mind-Body Class for Hypermobility and Chronic Pain

Published by HypermobileYogi

A few pictures from our 2nd Mind-Body class for Hypermobility today. We discussed wrist, neck and ankle issues, how to practice yoga safely with Hypermobility, proper form in specific poses, things to look for when practicing yoga, the use of props, and finished with a gentle flow yoga practice. Professional pictures by Christina Maldonado Photography    

Upcoming Events and Conferences! 

Published by HypermobileYogi

A few exciting updates:  1. The EDS Wellness HelpLine is live! You can schedule 15min phone appointments and also send emails to helpline@edswellness.org Direct link to HelpLine appointment scheduling – http://edswellness.org/index.php/make-an-appointment/  Link to post shared on EDS Wellness – http://edswellness.org/index.php/2016/10/16/eds-wellness-helpline-live-download-eds-wellness-app-make-appointment-register-classes-seminars-conferences/ 2. EDS Wellness has an App! Link to download the EDS Wellness App by Healcode LLC on iTunes – https://appsto.re/us/N7zbfb.i Also available on Google Play! 3. I’ve announced several events coming up, including yoga and mindfulness for hypermobility and chronic pain. Save the date if interested! See flyers below! Registration will be live soon!

Autonomic testing before my business meeting at 3pm

Published by HypermobileYogi

Days like today are why I’m grateful that the life I live and the work I do overlap. Gratitude.  Link to the autonaumic nervous system test (Ansar Testing) that I had done – http://www.tlcdiagnostics.com/patients/tests-and-procedures/ansar-testing What is autonomic dysregulation? http://www.mitoaction.org/guide/autonomic-dysregulation You can also visit www.dysautonomiainternational.org to learn more. 

Splits, Hypermobility and Yoga

Published by HypermobileYogi

Splits – not something I usually do in Yoga, not because they are hard, but because they are way too easy for me.   If you are hypermobile, splits can be super easy and done (or very close) with little effort – that’s not always a good thing. It may seem like a yogi dream, but many of the issues that can or may go along with hypermobility are not so great. Unfortunately, hypermobility has mistakenly been glorified in many sports, including dance, gymnastics, ice skating, and more. Yoga is much the same, but times are changing – thankfully because many of us were told not to do yoga and that yoga is dangerous if you have joint hypermobility, which is often caused by an underlying connective tissue disorder such as Ehlers-Danlos syndrome (EDS). There are several types of EDS, and also several other heritable conditions that affect the connective tissues and cause hypermobility – Marfan Syndrome is one, as is Williams Syndrome, Sticklers Syndrome, and Osteogenesis Imperfecta. There are also several types of hypermobility …

The Constant Whooshing in My Head …..

Published by HypermobileYogi

When you have constant, non-stop whooshing in your head (no, not just tinnitus), you’ve been diagnosed with Classical Ehlers-Danlos syndrome (CEDS) 3x, but genetic testing came back negative, and the EDS world really doesn’t know what you have – other than you have some kind of connective tissue disorder that’s not Marfan Syndrome, VEDS, or other more common mutations …… They do know that you have 2 CBS Gene mutations and a few other genetic mutations, but they haven’t determined how any, if at all, play a role in a type of EDS, or a connective tissue disorder that “looks like” Classical/Vascular/Hypermobility-types of EDS. And there’s no identified genetic marker(s) for Hypermobility type Doctors and genetic testing has also determined that you have 2 CBS Gene mutations and a few other genetic mutations, but they haven’t determined how any, if at all, play a role in a type of EDS, or a connective tissue disorder that “looks like” Classical/Vascular/Hypermobility-types of EDS. And there’s no identified genetic marker(s) for Hypermobility type EDS, unless you count TenX. …