All posts tagged: EDS Wellness

Mind-Body Strategies for Hypermobility and Chronic Pain

Published by HypermobileYogi

This 4 class/seminar series on Mind-Body Strategies for hypermobility and chronic pain, and is a collaboration between EDS Wellness and Dr. Deborah Norris with The Mindfulness Center in Bethesda, MD. The purpose of this series of 4 classes is based on two principles: 1. Part of the RYS 200 Yoga Instructor Training Program is a Seva requirement. Seva is a series of 4 yoga classes taught by a particular community – free of charge. It’s the community service requirement of the RYS 200 certification. Of course, I picked the hypermobility/EDS community to teach classes to. 2. One of the projects that I’ve been working on for EDS Wellness is a mindfulness for hypermobility program with Dr. Francomano, based on her experience with a study that she conducted years ago. Originally, the Seva component of my yoga instructor training and the project with Dr. Francomano under EDS Wellness were not one in the same. However, as time went on and because of Dr. Norris’ and The Mindfulness Center’s support of Wellapalooza and the work that I …

Upcoming Events and Conferences! 

Published by HypermobileYogi

A few exciting updates:  1. The EDS Wellness HelpLine is live! You can schedule 15min phone appointments and also send emails to helpline@edswellness.org Direct link to HelpLine appointment scheduling – http://edswellness.org/index.php/make-an-appointment/  Link to post shared on EDS Wellness – http://edswellness.org/index.php/2016/10/16/eds-wellness-helpline-live-download-eds-wellness-app-make-appointment-register-classes-seminars-conferences/ 2. EDS Wellness has an App! Link to download the EDS Wellness App by Healcode LLC on iTunes – https://appsto.re/us/N7zbfb.i Also available on Google Play! 3. I’ve announced several events coming up, including yoga and mindfulness for hypermobility and chronic pain. Save the date if interested! See flyers below! Registration will be live soon!

Autonomic testing before my business meeting at 3pm

Published by HypermobileYogi

Days like today are why I’m grateful that the life I live and the work I do overlap. Gratitude.  Link to the autonaumic nervous system test (Ansar Testing) that I had done – http://www.tlcdiagnostics.com/patients/tests-and-procedures/ansar-testing What is autonomic dysregulation? http://www.mitoaction.org/guide/autonomic-dysregulation You can also visit www.dysautonomiainternational.org to learn more. 

Gratitude for My Extended EDS, Mast Cell and Chronic Illness Family

Published by HypermobileYogi

When you lived in the middle of chaos – personally, professionally and literally, for about 2 years straight, fighting and climbing to the pinnacle of some invisible hill, one that only you can see, there are moments that keep you going just when you want to give up. For me, those moments have been the unwavering support and help from some of my very close EDS/MCAS/broader chronic illness world friends – not all are named here, but these women have been by my side, rolled up their sleeves and helped me with no questions asked. And they have really helped me. They have devoted their own time, resources, and what little energy they have to helping me with my far too many projects. They’ve helped make my aspirations come true, they’ve listened and supported me through a ton of crazy BS I’ve endured to get to this point, and they’ve worked – hard. Really hard, because they believe in what I do and they also care just as much as I do, if not more. …

May is EDS Awareness Month!

Published by HypermobileYogi

 May is EDS Awareness Month! 


In honor of EDS Awareness Month (May), Sarah Wells from My Stripy Life and I are sharing details on what you need to do to register for your FREE copy our parenting EDS Kids e-book ‘51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)‘ once it’s released! What first started out as a joint blog post about parenting and having kids with EDS, turned into a six-month-long project that Sarah and I have been working on off and on, waiting for the right time to finish and release it. As we continued to collaborate on it, we kept finding more and more to add, and even more information and resources that we wanted to make sure were included in our post – which then turned our joint blog post into a full resource e-book. This e-book is the real; no holds barred advice that we wish we knew, and we hadn’t had to figure out for ourselves, the stuff that the medical books don’t always tell …

51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)

Published by HypermobileYogi

Horraay! I cannot explain how excited I am to finally be able to share this awesome project with everyone! For EDS Awareness month we will be giving you a sneak peek each day from our upcoming e-book ’51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)’ – coming soon for EDS Awareness Month!

What first started out as a joint blog post about parenting and having kids with EDS, turned into a 6 month-long project that Sarah Wells (from My Stripy Life) and I have been working on off and on, waiting for the right time to finish and release it. As we continued to work on it, we kept finding more and more to add, and even more information and resources that we wanted to make sure were included in our post – which then turned our joint blog post into a full resource e-book.

The real, no holds barred advice that we wish we knew and we hadn’t had to figure out for ourselves, the stuff that the medical books don’t always tell you!

Stay tuned for more top tips each day and information about how to get a copy of “51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS)’ delivered straight to your inbox!

Cheers!

– Sarah & Kendra