All posts tagged: EDS Wellness

It’s the little things that keep you going …. 

It’s the little things that keep you going — especially after being up all night working trying to fix one of your websites (You know, the one that has the most traffic per day? Yep, that one. Fun times.) which totally crashed because of a plug-in update and you can’t get into the back-end either. No.Idea.What.To.Do. And ….. you had a product review due, actually, it’s overdue, and it was about to be posted before the devil plug-in corrupted everything. And finally, you were trying to work on editing speaker presentation videos from two very important conferences you held recently for your still newly launching nonprofit, when you put one of the big memory cards (“big,” meaning it can store a lot of content, especially video content on it) into your computer to make sure that all of its videos had already been downloaded. Thinking that all videos had more than likely already been downloaded, you opt to still triple check. Then, you realize that the memory card is empty when your computer reads it. …

Gentle Hatha Flow Yoga for Hypermobility and Chronic Pain with Kendra Neilsen Myles, C.H.E.S., RYT 200

Gentle Hatha Flow Yoga for Hypermobility and Chronic Pain with Kendra Neilsen Myles, C.H.E.S., RYT 200 of EDS Wellness. Full 55-minute class recorded at The Mindfulness Center as part of EDS Wellness’ Mind-Body Strategies for Hypermobility with Chronic Pain movement and support group program.   Please remember – Participate at your own risk. EDS Wellness, Strength/Flexibility/Health/EDS, their affiliates and this YouTube channel, are not liable for injury or issues that may occur as a result of viewing or participating in this recorded video, or other videos freely available on the Strength/Flexibility/Health/EDS YouTube channel. Always ask your physician, physical therapist, or another healthcare provider before trying a new exercise, movement, or another program. When in doubt, just watch. These classes are not suitable for everyone. They are also not to be misconstrued as a directive for everyone living with a type of Ehlers-Danlos syndrome, Hypermobility Spectrum Disorder, or their related conditions or as healthcare advice. Participation in this recorded class or any of our other videos means that you understand and accept EDS Wellness and Strength/Flexibility/Health/EDS’ and its …

#Just5Minutes even while on vacation

No equipment needed and videos are free on YouTube! My workout today was: – 2.41 mile walk with my husband on the beach (slower pace) for the #AmericaRuns5k benefitting EDS Wellness with Charity Footprints – Power Yoga Video with Michelle Goldstein (1hr) – https://youtu.be/FPR1I1qF6DA – Tracey Anderson’s Butt and Glutes 20 min workout –https://youtu.be/X7RDfw0NuZ8 The Strength/Flexibility/Health/EDS YouTube channel has several playlists with various videos from living with EDS videos to some of my favorite at home workout videos. It also has all Wellapalooza, EDS Wellness, Moving Naturally with Hypermobility, The Hypermobile Yogi & the edited Just 5 Minutes class videos. Subscribe by going to – https://www.youtube.com/channel/UCdecItNSmBhHUiKnckYfi4w

Heal, Restore, Empower – Wellapalooza 2017

One of my goals while growing EDS Wellness and working to expand the Just 5 Minutes initiative, has been to have our own yoga mats – mats that mean something to those we work with — and to us. The featured picture is one of the first yoga mat designs created for Wellapalooza 2017. Next, we are partnering with Sankalpa for another amazing design — and very different.  The EDS community identifies with the Zebra, but I prefer to do things a bit different and go against the norm. Hence, why I love the amazing yoga mat designs by one of the graphic designers I’ve been working with. Specifically, the Wellapalooza 2017 yoga mat is incredible — and my mom’s favorite birds was the hummingbird. Bonus for becuase of that too! Here’s what a Hummingbird symbolizes — I think it fits perfectly with EDS Wellness‘ mission and initiatives – “The Native American symbol of the hummingbird represents wonder and beauty. The hummingbird is also a healing symbol that helps people focus on the positive aspect of …

Living with EDS and MCAS

When you are the founder of a 501(c)(3) nonprofit and your focus is on serving those with Ehlers-Danlos syndromes, Hypermobility Spectrum Disorders, and related conditions, this is how you roll to a new doc apt. And again tomorrow too … I just want the hot spots on my thighs, the millions of pins and needles that are all over that are pricking me, and the cold breeze blowing on me, to stop. Otherwise, I may lose my mind. #RealLife #AllClearDermCheck #LivingWithEDS #MCAS #EhlersDanlos #NewLocalMCASDoc #PrayingSheCanHelpTheseReactions #AlreadyWarnedAfrin #LivingWithTheTrifectaIsARollerCoaster

Our 4th MIND-BODY STRATEGIES FOR HYPERMOBILITY AND CHRONIC PAIN class is today – December 2nd!

It’s hard to believe that our MIND-BODY STRATEGIES FOR HYPERMOBILITY AND CHRONIC PAIN program is almost over! Thank you to everyone who has registered and help support this important and fun initiative. A follow-up email including information shared in all 4 classes will be sent soon. Promise. For Real.  Our 4th class – Vinyasa Flow for Hypermobility and Chronic Pain will be a full 50-60 min class. Our final class will blend Hatha Yoga mixed with Gentle Vinyasa Flow Yoga. We will remain mindful of proper positioning and alignment for hypermobility and chronic pain but will move at a bit quicker pace during this class. However, this will still be a restorative practice. All levels welcome! This series of 4 classes are being held at The Mindfulness Center in Bethesda, MD. Classes begin at 1:30 pm. Please allow extra time to park and get set-up so that we can be mindful of the use of the studio and those who need it after our scheduled class is over . Address for The Mindfulness Center: 4963 …

What matters is that we showed up – together. 

Powerful class today.  12 people total showed up – vulnerable, open-minded and honest. I did the same.  We are all in this together.  While I’m learning to teach yoga and mindfulness to our community, versus solely speaking and writing about it, those who’ve come to our last three mind-body classes, have showed up to face their own fears surrounding movement and anything that may cause additional pain or trauma. What matters is that we showed up – together.  What matters is that we allowed ourselves to be vulnerable and open-minded.  What matters is that we know that we are not alone.  What matters is that we allowed ourselves to focus on the positives and what we can do, not just what we can’t – even if it was for #just5minutes.  I’m blessed and grateful to have the opportunity to walk this journey with all those who open themselves up and allow me to walk with them. Not lead them, but walk beside them.  Today was humbling.  Thank you to Deborah Norris, Ph.D. and everyone at …

Our 3rd MIND-BODY STRATEGIES FOR HYPERMOBILITY AND CHRONIC PAIN class is tomorrow – November 18th!

We had fantastic 1st & 2nd MIND-BODY STRATEGIES FOR HYPERMOBILITY AND CHRONIC PAIN classes!  Thank you to everyone who came out! A follow-up email including information shared in the both classes will be sent soon. Promise.  Our 3rd class will focus on the mindfulness for hypermobility study that was conducted at NIH a few years ago, John Kabat-Zinn’s Mindfulness program, and will include a 30 mins restorative yoga practice.  All levels welcome! This series of 4 classes are being held at The Mindfulness Center in Bethesda, MD.  Classes begin at 1:30pm.  Address for The Mindfulness Center: 4963 Elm St., Suite 100. Bethesda, MD 20814 (Above the Wells Fargo Bank) We have several people registered, which is great! If you are already registered or are interested in joining us tomorrow or for our final class in this series on December 2nd, here are a few suggestions to help ensure your safety and comfort: – If you have a yoga mat, you are welcome to bring it. However, The Mindfulness Center has plenty. I often recommend using …

Pictures from EDS Wellness’ 2nd Mind-Body Class for Hypermobility and Chronic Pain

A few pictures from our 2nd Mind-Body class for Hypermobility today. We discussed wrist, neck and ankle issues, how to practice yoga safely with Hypermobility, proper form in specific poses, things to look for when practicing yoga, the use of props, and finished with a gentle flow yoga practice. Professional pictures by Christina Maldonado Photography