Before I was knee-deep in launching a 501(c)(3) nonprofit, planning wellness retreats for patients and holding physician learning conferences, or before Sisters Media branched out into print and digital publishing for medical and health field, my main love other than working out, was photography. Still is by far one of the things I love the most – especially when I actually use my good camera. 😉
No equipment needed and videos are free on YouTube! My workout today was: – 2.41 mile walk with my husband on the beach (slower pace) for the #AmericaRuns5k benefitting EDS Wellness with Charity Footprints – Power Yoga Video with Michelle Goldstein (1hr) – https://youtu.be/FPR1I1qF6DA – Tracey Anderson’s Butt and Glutes 20 min workout –https://youtu.be/X7RDfw0NuZ8 The Strength/Flexibility/Health/EDS YouTube channel has several playlists with various videos from living with EDS videos to some of my favorite at home workout videos. It also has all Wellapalooza, EDS Wellness, Moving Naturally with Hypermobility, The Hypermobile Yogi & the edited Just 5 Minutes class videos. Subscribe by going to – https://www.youtube.com/channel/UCdecItNSmBhHUiKnckYfi4w
One of my goals while growing EDS Wellness and working to expand the Just 5 Minutes initiative, has been to have our own yoga mats – mats that mean something to those we work with — and to us. The featured picture is one of the first yoga mat designs created for Wellapalooza 2017. Next, we are partnering with Sankalpa for another amazing design — and very different. The EDS community identifies with the Zebra, but I prefer to do things a bit different and go against the norm. Hence, why I love the amazing yoga mat designs by one of the graphic designers I’ve been working with. Specifically, the Wellapalooza 2017 yoga mat is incredible — and my mom’s favorite birds was the hummingbird. Bonus for becuase of that too! Here’s what a Hummingbird symbolizes — I think it fits perfectly with EDS Wellness‘ mission and initiatives – “The Native American symbol of the hummingbird represents wonder and beauty. The hummingbird is also a healing symbol that helps people focus on the positive aspect of …
Acupuncture, Alpha Stim, Bio mat, Infrared Sauna, vitamin B-12 shots, and more at Shakthi Health and Wellness Center – spending the afternoon with Brianna of Brianna’s Medical Journal (AKA – “Rockship”).
My nephew decided that he was going to start to 30 push-ups each day because someone commented on his “spaghetti arms.” I told my sister that I would join him because I couldn’t do 30 push-ups in a row in my feet either. They didn’t believe it. But nope, I have my own #EDSSpiral that I’m working out of. So, tonight I did 30 total push-ups – 15 on my feet and 15 on my knees. That was 5 more on my feet than the last time. Post originally posted on Instagram – https://instagram.com/p/BSDbWdgDC6v/
Trial by fire – teaching (subbing) my first yoga class to the general public vs. solely my EDS Community. I survived. I taught Gentle Stretching Yoga at 6:30pm at The Mindfulness Center. Thankful for Jessie’s “flow” notes.
RP from my Instagram. I was dying and laughing at the same time. I think I was screaming at him too.
Saw a new MCAS doc today. Other than my main docs, I do not have a local doc who understands MCAS and issues associated with sensitivities to meds, etc. I’m not one to doctor shop and don’t have time to anyway, so I’ve just dealt on my own – barely. However, things have gotten worse, especially associated with hormones. Two times a month, my body decides it really wants to party hard (more than usual) by attacking itself and anything I eat or take. Fun times. My husband came with me and after we discussed the main gist of why I was there with my new doc, I asked her about allergy testing. I wanted to ask her for two reasons: 1. I’ve never had it and am somewhat curious. 2. Her response would give a good indication of her knowledge and understanding of MCAS overall – particularly for my case. Of course, I could be “allergic” to something more traditional and that would make things a lot easier – right? My new doc’s response …
And what else can you do when you sleep like this? I met my friend at Zengo Cycle and I’m pretty sure she left shocked – per usual. However, class this morning reminded me of why I started going to Zengo in the first place – just about 5 years ago? ‘CLIMBING OUT OF THE EDS SPIRAL – MY ZENGO STORY’ http://strengthflexibilityhealtheds.com/2015/05/13/climbing-out-of-the-eds-spiral-my-zengo-story/ #Just5Minutes #LiveEDSStrong #InvisibleStrength #EhlersDanlos #Hypermobility
When you are the founder of a 501(c)(3) nonprofit and your focus is on serving those with Ehlers-Danlos syndromes, Hypermobility Spectrum Disorders, and related conditions, this is how you roll to a new doc apt. And again tomorrow too … I just want the hot spots on my thighs, the millions of pins and needles that are all over that are pricking me, and the cold breeze blowing on me, to stop. Otherwise, I may lose my mind. #RealLife #AllClearDermCheck #LivingWithEDS #MCAS #EhlersDanlos #NewLocalMCASDoc #PrayingSheCanHelpTheseReactions #AlreadyWarnedAfrin #LivingWithTheTrifectaIsARollerCoaster
