Author: HypermobileYogi

Fluid Retention, Joint Hypermobility, and My Knees

I can tell you all this – I’ve had issues with fluid retention like this off and on for years. It’s not always dependent on a reaction, but I do get swelling then to. This is swelling that is just there and is hard for anyone to see other than me, but you see it off and on, there’s a clear diff of about 5-10 lbs and it happens fast. It’s also everywhere, but specifically affects my legs and arms. And both places aren’t where I gain weight quickly. My legs yes, but that’s on my hips, the water retention and what my skin looks like happens on my legs above my knees and I don’t have fat there. It’s the craziest thing bc I used to think it was bc I ate too much of sweets, but when it comes off, it comes off fast – like in a day. I can suddenly see muscles that I thought I lost (I workout often also) and my skin looks different. I have learned that too …

I Hope You Dance …. 

You are so much more than your illness. Or, the DNA that your body is made with – good and not so good. You are so much more than how others perceive you. Your identity and value as a person, mother/father, spouse, employee, daughter, etc., is not defined by what society values most, or how someone else determines his/her self-worth. Your worth isn’t determined by how you look, the clothes you wear, or the money you make. Your value, your worth, the legacy you leave, is determined by your integrity, the life you choose to lead, and the impact you make on those you come in contact with.   “True strength comes from helping others while we are walking through our own storm.” – KNMyles for the Our Stories of Strength – Living with Ehlers-Danlos syndrome Anthology (published May 2015. Not currently in available).  

Yoga Therapy at Any Age?

Earlier today, I saved an article to read later. The article that I saved was about an 85-year old woman, living with severe osteoporosis and a terrible hunch back, who made incredible progress in her posture and pain through yoga. Tonight, after YTT (Yoga Instructor Training),  I finally had the chance to read the article I saved. I love this article for so many reasons — it made me think of my Gram, who suffered for years with chronic pain due to undiagnosed Ehlers-Danlos syndrome, and who also suffered from severe kyphosis, scoliosis, and osteoporosis — all due to EDS also. Smoking two packs of cigarettes a day, and her lack of movement of any kind, didn’t help either. Of course, any article sharing the story of someone who has enjoyed great success through yoga, and the personal care and instruction of a knowledgeable yoga teacher, is pertinent to me because of being in YTT. However, these stories are also important because they share hope, strength, and the focus is often on the body’s amazing …

Online Yoga Support Group for those with Hypermobility Syndrome/EDS

An online group for those who are interested in learning ways to practice yoga safely with joint hypermobility/hypermobility syndrome (HMS)/Ehlers-Danlos syndrome (EDS). All levels are welcome – new and experienced. Click on the link below. https://www.facebook.com/groups/1492484514393113/ You can also follow the Hypermobile Yogi Facebook Page

EDS Population Survey – Utah and Surrounding Areas

Ehlers-Danlos syndrome (EDS) is a common comorbid condition to Mast Cell Activation Disorders. For those who have been diagnosed with EDS and live in Utah or surrounding areas, please consider taking this survey. “Make your EDS voices heard! There is a medical institution in Utah that is considering opening an EDS devoted center or clinic. One of our main volunteers and personal close friend, has been asked to help collect data to convince the funding side of this potential project that there is need, that there are enough of us, and that we would show up for diagnosis and/or treatment, if a center exists. If you live in the Western US, or would be willing to travel to Utah for treatment, please take a moment to complete the following survey. Our friend collaborated in designing the survey, and has been assured that the data will be seen by those in a position of influence and decision. This information will be used to help inform what kinds of services are needed. Please feel free to share …

#Just5Minutes of Barre – The realization that I’ve seriously deconditioned

#Just5Minutes of barre thanks to Tracey Mallett Fitness’ Booty Barre workout video. BootyBarre plus arms and abs kicked my butt today. Could also be from the lovely #POTS flare I’ve been dealing with lately, but I still got through it. Lots of stops and restarts. Lots of trying to breathe deeply despite feeling seriously out of breath and my heart racing even higher after I stop moving. Barre is also low-impact which makes it more frustrating when I have a hard time keeping up. I move my leg and my heart rate skyrockets. As much as I don’t want to admit it, I’m pretty sure this flare is exacerbated by overall deconditioning that’s progressed over the last year because of working on my computer more, and moving around a lot less during the day, despite still working out and staying active. My strength sessions have also struggled, as have my consistency with going to cycling – both are two things that make a huge difference in how my body reacts to exercise and fights against “The …

Wellapalooza 2016 3-Day Integrative Wellness Retreat

Wellapalooza 2016 is 3-day integrative wellness retreat in the MD/DC/VA area – we are a different type of medical or wellness conference! We’ve added a few updates to our event schedule and bios on Team Wella 2016. Additional details and answers to questions that we’ve received are explained below. If you do not find the answers you are looking for, please send us an email to info@wellapalooza.com. Whatever is not included here, will be either posted tomorrow on the Wellapalooza website and Facebook page or sent in an email. Still, if you have additional questions or if I do not include an answer to your question, please send an email. Wellapalooza 2016 Information Wellapalooza 2016 is thrilled to host incredible speakers such as Dr. Clair Francomano — Geneticist & Ehlers-Danlos syndrome specialist, Dr. Larry Afrin – Oncologist/Hematologist — Mast Cell Activation Disorder specialist, Dr. Christine Mohrhaus Hale — Tenet Healthcare, Dr. Deborah Norris, Ph.D. — The Mindfulness Center, and Rebecca Snow – Nutritionist/Herbalist. Additionally, we are holding a Physicians Learning Lunch in conjunction with Wellapalooza …