All posts filed under: Gratitude Journal

Life by Design – Gratitude for doing what I love 

I started my first business 10+ years ago after I had baby #1 after I was diagnosed with EDS. This business was also started after being on long-term disability from my “career” job, one that I loved, and after facing the decision to accept or decline permanent social security disability at age 27yo. I declined it. My choice — being disabled at 27yo didn’t feel right for me, and working, doing something, helps me manage my health and well-being. I also needed to help support my family, be available for my son (only one baby at the time), and have flexibility around my husband’s job. I figured I could find something that I could do on my own, and I did. Five years ago, I started a 2nd business to serve the community that I was now a part of — both as a patient and volunteer. I wanted to use my degree to help disseminate education and work with people on how they could best help themselves, if they didn’t have a physician or PT …

I Hope You Dance …. 

You are so much more than your illness. Or, the DNA that your body is made with – good and not so good. You are so much more than how others perceive you. Your identity and value as a person, mother/father, spouse, employee, daughter, etc., is not defined by what society values most, or how someone else determines his/her self-worth. Your worth isn’t determined by how you look, the clothes you wear, or the money you make. Your value, your worth, the legacy you leave, is determined by your integrity, the life you choose to lead, and the impact you make on those you come in contact with.   “True strength comes from helping others while we are walking through our own storm.” – KNMyles for the Our Stories of Strength – Living with Ehlers-Danlos syndrome Anthology (published May 2015. Not currently in available).  

Mast Cell Madness and A Yoga Retreat (YTT 15hrs)

Mast Cell Madness and A Yoga Retreat In January, I received the results from an eight-year-old colonoscopy that was stained for mast cells – the same month I started yoga instructor training with The Mindfulness Center. Despite doing what I do and the fact that I was helping Dr. Afrin publish his book, the results were not easy to accept. I felt anger & resentment, not to mention emotional and very scared. For me, mast cell issues have been a part of my life since I was a kid – I just didn’t know what “it” was. And no matter what I was or what “it” is (the EDS/MCAD/Dysautonomia/chronic illness combo), the reality is that about a year and a half ago, things dramatically changed after I got the flu shot for work. When you work in hospitals, especially in the OR, you are required to get the influenza vaccine – something I’ve done a number of times with no issues, or so I think. Three hours after I got the shot, I doubled in …